Monday, March 29, 2010

Testifying Before Congress


Loved Ones,

The girls and I traveled to D.C. last week for a Congressional Hearing on cancer research. I was able to take part in the hearing, giving testimony about the sore lack of funding for gastrointestinal cancers like Ray's. It was thrilling to be able to speak to people who can truly make a difference; a big step in our campaign to alert the National Cancer Institute to the problem, and motivate action. Many many people helped to make this happen and happen well and we were so glad to be able to devote our efforts toward preventing additional death and loss from these cancers.

Nora and Maggie were able to attend the hearing, to hear the words said about their dad, and witness the actions taken in response. And this, a big step in our campaign to restore our own security.

I have been listening to a copy of Il Divo's Christmas album. Someone, during that Christmas when Ray was sick, sent this CD. I've been so glad of it. There is a song, that speaks of a person who almost loses his faith, but then finds it again. "Come and rejoice, what is lost is found."

When I hear this song I always feel a wellspring of emotion. Though I've felt no danger of losing my faith in any of this, my own security, and that of my girls, was rocked by all that we endured, and it's taking awhile to regain our footing. Because, one cannot be reassured in the same ways.

Before Ray was sick I knew intrinsically that the answer to fears could not be that they would not occur. But I hoped it was the case. Of course I know now, in a very real way, that fears can and do occur. And my girls know it too. And so to quiet those fears, one cannot respond that things just won't happen again, that somehow, we've fulfilled our duty. There has to be safety, even knowing all that can occur.

Of course, looking back, we know that we were held and sustained by our God. And there is hope in that.

It is the paradox of knowing that we can survive, and not wanting to lose again. The task of wholly and truly submitting to God's will, even and especially knowing what it can entail.

There are days, many days, where I simply want to beg God whatever his will, not to let it occur. But I strive to, as my dear and recently departed Grandma Gaye says, say: "Yes Lord, yes, yes, YES."

And so this is my task. To find this way of existing, not in fear, but in confidence, whatever may be to come. To live this for myself, and teach it to the girls. To be able to say, someday, and hopefully someday soon, that what was lost, is found.

not alone and not afraid,

kristin

"So he got up and came to his father. But while he was still a long way off, his father saw him and felt compassion for him, and ran and embraced him and kissed him. "And the son said to him, 'Father, I have sinned against heaven and in your sight; I am no longer worthy to be called your son.' "But the father said to his slaves, 'Quickly bring out the best robe and put it on him, and put a ring on his hand and sandals on his feet; and bring the fattened calf, kill it, and let us eat and celebrate; for this son of mine was dead and has come to life again; he was lost and has been found.' And they began to celebrate." Luke 15:20-24

Thursday, January 21, 2010

One Year Anniversary

Loved Ones,

We had a very special day remembering Ray today. It was filled with a lot of Ray's favorite things, and a lot of our favorite ways to remember and honor him. Friends and family gathered here in Naperville, in Chicago, and in DC for masses in Ray's honor, with times of fellowship, food and fun memories as well.

It means so much to us the many of you that remembered Ray in many ways. The calls, prayers, emails, and your presence with us meant so very much.

We miss Ray so much every day, and we are so glad to have the time with so many of you to honor him.

And, we express our heartfelt thanks for the many ways that you have remembered Ray and supported us throughout this first year.

"The LORD is my shepherd, I shall not be in want. He makes me lie down in green pastures, he leads me beside quiet waters, he restores my soul."
Psalm 23:1-3


not alone and not afraid --

kristin

Sunday, January 10, 2010

A planting of the Lord for the display of His splendor

Loved Ones,

For the past few months I've been encouraging a family with cancer. Their tale is similar to ours and it will have a similar ending soon. As they sit at the side of their loved one, however, there is joy, there is peace and above all, there is faith. Something I also have experienced. As I searched for a verse to send them, I found this:

"The Spirit of the Sovereign LORD is on me, because the LORD has anointed me to preach good news to the poor. He has sent me to bind up the brokenhearted, to proclaim freedom for the captives and release from darkness for the prisoners, to proclaim the year of the LORD's favor and the day of vengeance of our God, to comfort all who mourn, and provide for those who grieve in Zion— to bestow on them a crown of beauty instead of ashes, the oil of gladness instead of mourning, and a garment of praise instead of a spirit of despair. They will be called oaks of righteousness, a planting of the LORD for the display of his splendor."

Isaiah 61:1-3

Nowhere is this more apparent, than at the bedside of a loved one who is going too soon.

That crown of beauty, that oil of gladness, that garment of praise, that can only come from strength far beyond ourselves.

And it struck me that this is true of us too. That our life this year -- this crown of beauty reclaimed from ashes -- yes, many times in sadness, but always in faith and often with joy -- that this too is a testimony of the strength of our Lord. A planting of the Lord for the display of his splendor.

Though it is not understandable, it can only be true.

These verses and these thoughts, give me comfort. Especially as we near the one year anniversary of Ray's death on January 21.

not alone and not afraid --

kristin

Saturday, December 26, 2009

Ray's First Christmas in Heaven

Loved Ones,

Well, Ray had his first Christmas in heaven and we had ours without him here. It is good to think of the celebration they must have up there.


But, we sure miss Ray. There were so many times during the season that we missed him dearly. I tried to keep focused on anticipating Christ's coming and patiently waiting for his plan. So many things about advent really spoke to me this year.

We thank you for the many ways that you reached out to us this season -- even a sentence or two in a Christmas card meant a lot. Things still aren't the same and the many gestures of care helped us when we felt Ray's absence so strongly.

We pray that you had a joyful Christmas.

"For a child has been born for us, a son given to us;authority rests upon his shoulders;and he is named Wonderful Counselor, Mighty God,Everlasting Father, Prince of Peace." Is. 9

not alone and not afraid --
kristin

Monday, November 30, 2009

Thanksgiving

Loved Ones,

I wanted to write a note to tell you how thankful we are for all of you. We know that your love and care have helped us get through these last 10 months without Ray here. I know that it is hard to sometimes know what to say or do, but I wanted to say thank you for figuring it out and helping us. I feel God has blessed us with some special angels, and I am very grateful. And I know the girls are too.

It is very sad to enter this holiday season without Ray at our side. We miss him so every day. Today we had dinner with Ray's family and we were so glad to be with them. We are very thankful for our family and their unending support.

And the girls and I are so thankful for each other! We do not take this gift lightly. Each day is so very precious.

As the days go on, we are simply grateful for every minute we shared with Ray. And for every moment we think of him now. We know he must be very close today.

This was our Thanksgiving prayer from last year. And I thought it fitting today.

"Sing and make music in your heart to the Lord, always giving thanks to God the Father for everything, in the name of our Lord Jesus Christ." Ephesians 5:20

not alone and not afraid --

kristin

Sunday, October 25, 2009

Last Soccer Game

Loved Ones,

Sometimes it is not the days that I expect to miss Ray that I really miss him, it is other days, days that don't seem on their face as monumental, but are.


I am prepared that Ray will not be there for his birthday, for example, but I forget to be prepared for other smaller events.


Today was our neighborhood Halloween party, and as I got the girls ready, I thought, wait, who do I show them to? And then Ray's absence seemed so large. And I missed him as I walked through the doors, and as I sat with the other moms and dads and watched the girls.

Later in the afternoon, it was Nora's last soccer game for the outdoor season. Lucy is fighting a cold so I waited until the last second to get her up from her nap and out the door. And all the way to the game she coughed and coughed. When we arrived, I told Nora I'd have to miss the game because I couldn't have Lucy outside in the cold, thinking I should probably take her to the doctor instead.

But then the sun came out and Barbie Nutcracker went on in the car and I got to coach Nora's last game.

If only I could summon Ray's help whenever I need it. But today, he was there.

"If I go up to the heavens, you are there; if I make my bed in the depths, you are there. If I rise on the wings of the dawn, if I settle on the far side of the sea, even there your hand will guide me, your right hand will hold me fast." Psalm 139:8-10

not alone and not afraid --

kristin

Tuesday, October 13, 2009

Ray's Birthday



Today was Ray's 38th Birthday. We celebrated in many ways; remembering the very best of Daddy's favorite things, sending balloons to heaven with Ray's family, celebrating the person we miss so very much.

Over the weekend and today, so many people expressed such tender thoughts about the friend they miss too. How much this means to us.

At a mass this morning for Ray, our priest said these words, "When our life is over, let us hope that the story of our lives is so much more beautiful than its cover (our outward appearance)."

How I wish the story of Ray's life went on much longer. But I am so appreciative of its beauty.

not alone and not afraid --
kristin